For now though, I have a rash. I have no idea what it is, but plan on making a dermatologist appointment sometime this week.
That brings up the annoying issue of when I go to my endocrinologist, he ONLY treats my thyroid NUMBERS, not the patient. So when I mention any other ailments or anything, he blows it over and back to the NUMBERS. So any extra help I have gotten has been me calling my regular doctor and having them refer me to yet another specialist. So I am in control, and I have to call THIS week. I have tried to capture my rash with pictures, and yes, even showed my endo...but alas, I could have been showing him a photo of anything...no acknowledgment at all i was even in the room. So here they are for you to admire...
The rashes, they come and go....very itchy and raised like bug bites in patches all over my arms, and my back is so itchy too I can't stand it. My stomach has it as well. Lotions and bath washes don't help at all. They turn into dry rough patches of skin after a week or two and are scaly to the touch. New patches come and go, this has been going on now for about four months...NO IDEA what it is, but it is so bad I am calling the skin dr. Monday. Will keep you posted on what I find out.
For list of autoimmune diseases , go to this page:
http://www.aarda.org/descriptions-of-diseases/#Meniere’s%20disease
It gives the names, as well as descriptions...if you have an auto immune disease, please comment and share. OR, if you know what I have...please let me know your ideas. Thanks!!!!
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ReplyDeleteI see this is an old post. Can I ask what ever came of this? Did they figure it out for you? I have something that looks very similar to this and it was also turning into dry patches at first. I have managed to keep it from turning into dry patches by constantly applying an Aloe Vera based lotions several times a day. The spots burn like crazy after a shower and itch if I don't keep them moist all day.
ReplyDeleteI also have a similar issue with my face but I don't know if it is related to the arms as that rash seems to calm down a lot more than my arms do. I only got diagnosed with Hypo last month but I have had symptoms for about 13yrs. Since my numbers were in range doctors wouldn't bother to treat me. The rash is the newest addition to my symptoms. My face has been getting rashes for about a year but my arms have only been like this since the spring time.
I would like to know as well i been deling with hives and rash for 2 yrs now and now they are saying i am hyper and not hypo anymore as i upped my meds to a whole 100 mcg and i guess i upped it to much so dr has me on 75 mcg and i will get rechecked in late august to see , i now havehives al over my body and it stings and burns bad sometimes from my head to my toes i have them before it was just my arms and legs slowly it got worse , when i first started the levothyroxine when i first found out i was hypo the dr wanted me to start at 100 mcg but it was too much the first pill i had heart palpitations and bad headache so he said try 25 or 50 so i did and i worked my way up myself, which i shouldn't of done i should of got my levels checked and i didnt i just kept going up so anyways i was at 50 mcg for awhile and was doing good hives went away after about 4 months or so on the med and i was feeling much better , but then i started feeling tired again cold and knew i needed to up the dosage so i did but i should of stayed on 75 for awhile and i only did for a month and then i went to 100 which was my mistake it was too soon anyhow the only reason why i did this myself was i had no insurance and thought it was ok, well don't without a drs approval and lab work ! Anyhoo i would like to know any thing that works for the rashes and hives myself . My new dr thinks the hives are not related to the hypo now but I tend to disagree. And thyroid issues run in my family my mom ,me and my sister all been diagnosed with hypo . I seen in my paper work dr put me down as having hashimoto's but he said nothing to me about it but i plan on asking . I have researched a lot on the internet since have had the hives and hypo hoping for answers . All my other normal lab work was good dr said just my cholesterol which I read can be raised by thyroid problems . I would like to get my vitamins and all checked also and find out if i am really hashimotos for sure. Any advice would be appreciated !
ReplyDeleteAlso i do have psoriasis which is an autoimmune disease and i have ibs , acid reflux and bile acid malabsorption and other issues, which i read everything goes back to the gut, even the thyroid issues , it can effect. And i honestly believe it .
ReplyDeleteBeen doing aveeno oatmeal baths it helps some but not enough all the antihistamines i been on have really messed me up rough on my stomach , and drugs me . I am on allegra for the hives itching and hydroxyzine as needed also for itching , but i don't like it as it puts me to sleep and makes my stomach hurt some, so i only take it when i go to bed , and deal with the itching all day which sucks ! The hives or rashes it feels like prickly heat but it stings and itches immensely! Now i had the rash on the arms (middle bicep )off and on for yrs and i never knew it was my thyroid but funny thing that is finally gone now but that never really itched or anything . Now if i get too hot i get flushed or rashes but when i cool off they go away i always been like that as far as i can remember . And i always have had sensitive skin since i was a kid.
ReplyDeleteI would like to know how you treated it. I have been hypo for several years now the last few months I have been getting hives. They get worse with stress, heat and water. It looks exactly like yours. They itch when touched. Sting when wet and fade some with benedryl. They come for 2 weeks at a time.
ReplyDeleteI been going to the allergist getting xolair shots so far they are working but I still have flares, but not as bad as they were for sure , I recommend getting your thyroid levels checked and going to an allergist. I need to go to a thyroid specialist also which I haven't been able to do yet . Which I think I need to also. Also someone told me to go to my gynocologist and get on hormones I have hashimotos hypothyroidism ans I read this is common with it to get hives and I have another auto immune disease( psoriasis) which the allergist feels that that and the hypo which is also auto immune disease is causing it . Good luck I am at my wits end myself with the hives for over 2 yrs I been dealing with them the shots are a life saver and I am taking xyzal in am and zyrtec in pm and I take prednisone also sometimes and that helps also . Benadryl in between all that if needed . Witch hazel helps and Aveeno baths and Benadryl cream or a steroid cream like hydrocortisone or prescription from Dr. I know your pain its an awful thing I hope we both can dind the cause and get it cured . I wish the lady who wrote this blog would come back maybe she might have the answers we need. Look up hives and all I have done alot of reading , heat cold stress all trigger mine . any physical activity or sweating . Definetly stress. Wear 100 cotton sleep on cotton also I can't wear pants most of time that sucks! And Fragrance free products just about everything I use . No tight clothes .I was covered head to toe in hives it got real bad .The itching is the worst! I wish you luck amd healing and peace Amen Praying for all with this nasty condition.
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